I'm practicing pain management, and I'm sleep deprived, but I'm home sweet home!
We drove slowly and carefully through the snow packed roads on Friday and made it to the hospital for my microdiscectomy back surgery for my herniated L5 S1 disc.
Prepping me I was a little nervous and caught off guard when they couldn't get my IV line started in. The anesthesiologist/vampire went for my neck. It wasn't as bad as I thought it was going to be. They numb you up pretty good and actually suture it into place. You are left looking like a borg with tubes sticking out of your neck.
I remember being told take a few deep breaths and next waking up in recovery. I have no recollection of being rolled over onto my stomach onto the special $70,000 back surgery table at Mercy hospital.
My surgery was scheduled for 1:00pm. Wheeled into my hospital room, I was stunned to see it was dark outside and it was already 6:00pm. Times flies when you're unconscious.
The nurses and nursing aides were awesome and took such great care of me! Although I didn't get any sleep, they made me as comfortable as possible. I had leg wraps that inflated and expanded automatically to keep my blood circulating. I was hooked up to the IV and a pulse oxygen monitor. That wasn't so pleasant because I kept setting off the alarms on the machines if I even moved an inch.
I became frightened in the wee morning hours when my leg pain came back with a vengeance. Instead of it being my upper hamstring area, it was my lower leg/calf/foot. It felt like it had been dipped into fire and the flesh was being burned off. I was in tears thinking I had made a huge mistake having this surgery. Once again the nurses were awesome doing everything within their power to help me. They helped me walk the halls and that helped a little. They also gave me morphine which took the edge off.
My nurse also took the time to settle my anxiety. She pointed out to me this pain was happening where I had previously experienced numbness. She suggested it was my nerve waking back up.
When I saw my neurosurgeon the next morning, he told me he had to remove "A LOT" of disc material, more than he usually sees in patients under going microdiscectomies. Some of the herniated material had actually dropped down and curved around my nerve so he had to go at it from multiple angles. No wonder why my nerve was so pissed off at me!
I'm happy the burning pain has gone away and I'm praying it stays away as I recover. Coming home today felt so good! Even though I was offered to stay another night by my neurosurgeon, I want to be with my family and be in my bed. I will miss being able to walk the long hospital hallways, but I'll walk around my house, doing laps.
I'm in pain, mostly back, but I have oxycodone and for a short while Valium to help reduce muscle spasms. I can lay on my back for a short while but I'm most comfortable getting up and walking slowly. This is what was recommended to speed recovery and reduce scarring.
I'll return in 10-12 days to remove the stitches and then I can begin taking an anti-inflammatory once again. In the mean time, I am going to try and avoid sugar, dairy and grains to reduce inflammation, and I have my ice pack to lay on. I'll drink lots of Sleepy Time tea too!
Today is Day 1 of my recovery and I'm hopeful my body will improve each day, bringing me to my goal of being active once again. I can feel the love, support, prayers and positive thoughts from all my family and friends and it is helping me a great deal. THANK YOU!!
Saturday, December 22, 2012
Wednesday, December 19, 2012
Just Get Me To Friday
My microdiscectomy surgery is Friday. I've read about the procedure, but I'm electing to turn off my autodidact powers, stopping short of watching an actual video of the procedure. I'm a visual person. If I see it, I'm worried it will amplify my anxiety. When I'm rid of all this pain, maybe then I'll watch it and think, wow, they did that to my back!
I frankly have no idea how people with a herniated disc can NOT have this procedure. I have visited depths of pain that have made me scream drastic things. I have to pop in an oxycodone every 4 hours instead of 6-8 to keep my tears from flowing. (I have my neurosurgeon's approval for this dosage.)
My favorite position is laying in bed, ice pack on my lower spine, pillows under my knees and at my sides. After some time however, I have to get up and move or the leg pain becomes unbearable. For some reason, slowly walking, shuffling my feet is the most comfortable I can make my body. Unfortunately, I'm not a sleep walker and my feet usually demand a rest at some point.
I've been told once the exploded jelly like disc material is cleared away and my nerve can position itself back where it was designed to be, my leg pain should disappear and hopefully my foot and lower calf will come back to life. I've been walking on pins and needles in my right foot for weeks now.
My neurosurgeon has warned I will still feel quite a bit of pain in my lower back but that should go away with time as I heal from the procedure. The nerve damage may take some time to heal, but he's confident it will heal since I'm having this procedure done sooner rather than later. He expects me to be walking 3 miles a day by spring.
I'm looking forward to being able to recover. Right now, I must be extra cautious I don't damage myself further. Its very difficult to remember I shouldn't be lifting anything heavier than 1 pound and I shouldn't bend over at all. Of course, my body reminds me sharply when I forget.
My poor puppy Rigby doesn't understand why we don't go for walks anymore. I'm grateful the rest of my family is able to walk and play with him, but he sadly looks up at me as if to say, "Don't you love me? Why won't you play with me?" I will be so happy to be able to walk him once again.
You take for granted how often you need to bend to pick something up. I've needed soap on a rope more than once this past week. Rigby has enjoyed many culinary delights he otherwise wouldn't have as I have dropped food and not been able to pick it up before he munched it.
Although I've mastered dressing myself, I can't put my right sock on. I'm sure my boys are growing weary of having me stick my foot in their face, asking for help. I'm looking forward to being able to take care of myself on my own.
My husband and family I'm sure have a new appreciation for the time it takes to take care of housekeeping,shopping and meal preparations. I'm grateful they have been able to do everything I can't, but I still hate having to burden them with my share of daily living chores. I will gladly vacuum the floor once I'm able to again.
My husband has been sick, yet he continues to put in extra time at the office so he can take off for my surgery. I want to be well so I can take care of him, instead of him always having to take care of me. I miss being able to be the wife he deserves.
I'm expecting recovery to be painful, but hopefully it will be a productive pain that eventually diminishes. I'm hoping physical therapy will teach me how I can strengthen my body to prevent my other bulging discs from herniating. I've had other people, including my neurosurgeon, tell me they've had multiple back surgeries, but I don't want this to be me. Once is more than enough!
When I allowed the pain to depress me, I'd have thoughts like - remember when I climbed up the cargo net in the Dirty Girl Race? I couldn't do that now. Will I ever be able to do it again? Look at those people dancing, running, driving, shopping, laughing, etc. Will I ever be able to enjoy life again like them?
I've learned how being able to be active and mobile, being able to take care of yourself and others, is where life's joy is found. I'm craving it back so badly!
I'm choosing to push the depression aside, believing instead this procedure will free me. I will focus on recovery, not on the risks. I will remember my gratitude and when able, share and serve with others to the best of my ability.
Bring on Friday, put me under, stick those instruments into my spine and get me moving again! I don't want to lose out on life any longer than I have to.
I frankly have no idea how people with a herniated disc can NOT have this procedure. I have visited depths of pain that have made me scream drastic things. I have to pop in an oxycodone every 4 hours instead of 6-8 to keep my tears from flowing. (I have my neurosurgeon's approval for this dosage.)
My favorite position is laying in bed, ice pack on my lower spine, pillows under my knees and at my sides. After some time however, I have to get up and move or the leg pain becomes unbearable. For some reason, slowly walking, shuffling my feet is the most comfortable I can make my body. Unfortunately, I'm not a sleep walker and my feet usually demand a rest at some point.
I've been told once the exploded jelly like disc material is cleared away and my nerve can position itself back where it was designed to be, my leg pain should disappear and hopefully my foot and lower calf will come back to life. I've been walking on pins and needles in my right foot for weeks now.
My neurosurgeon has warned I will still feel quite a bit of pain in my lower back but that should go away with time as I heal from the procedure. The nerve damage may take some time to heal, but he's confident it will heal since I'm having this procedure done sooner rather than later. He expects me to be walking 3 miles a day by spring.
I'm looking forward to being able to recover. Right now, I must be extra cautious I don't damage myself further. Its very difficult to remember I shouldn't be lifting anything heavier than 1 pound and I shouldn't bend over at all. Of course, my body reminds me sharply when I forget.
My poor puppy Rigby doesn't understand why we don't go for walks anymore. I'm grateful the rest of my family is able to walk and play with him, but he sadly looks up at me as if to say, "Don't you love me? Why won't you play with me?" I will be so happy to be able to walk him once again.
You take for granted how often you need to bend to pick something up. I've needed soap on a rope more than once this past week. Rigby has enjoyed many culinary delights he otherwise wouldn't have as I have dropped food and not been able to pick it up before he munched it.
Although I've mastered dressing myself, I can't put my right sock on. I'm sure my boys are growing weary of having me stick my foot in their face, asking for help. I'm looking forward to being able to take care of myself on my own.
My husband and family I'm sure have a new appreciation for the time it takes to take care of housekeeping,shopping and meal preparations. I'm grateful they have been able to do everything I can't, but I still hate having to burden them with my share of daily living chores. I will gladly vacuum the floor once I'm able to again.
My husband has been sick, yet he continues to put in extra time at the office so he can take off for my surgery. I want to be well so I can take care of him, instead of him always having to take care of me. I miss being able to be the wife he deserves.
I'm expecting recovery to be painful, but hopefully it will be a productive pain that eventually diminishes. I'm hoping physical therapy will teach me how I can strengthen my body to prevent my other bulging discs from herniating. I've had other people, including my neurosurgeon, tell me they've had multiple back surgeries, but I don't want this to be me. Once is more than enough!
When I allowed the pain to depress me, I'd have thoughts like - remember when I climbed up the cargo net in the Dirty Girl Race? I couldn't do that now. Will I ever be able to do it again? Look at those people dancing, running, driving, shopping, laughing, etc. Will I ever be able to enjoy life again like them?
I've learned how being able to be active and mobile, being able to take care of yourself and others, is where life's joy is found. I'm craving it back so badly!
I'm choosing to push the depression aside, believing instead this procedure will free me. I will focus on recovery, not on the risks. I will remember my gratitude and when able, share and serve with others to the best of my ability.
Bring on Friday, put me under, stick those instruments into my spine and get me moving again! I don't want to lose out on life any longer than I have to.
Thursday, December 13, 2012
Fearing The Pain
I met with my neurologist and reviewing my MRI results he informs me I have a herniated disc at L5 S1. He immediately rises from his seat and tells me he needs to consult with a neurosurgeon immediately.
I'm left alone in the room, staring at the computer screen, looking at that dark mess where it should be white. The pain I have been feeling is definitely there in black and white magnetic imagery.
Wait - did he say neurosurgeon as in surgery? BACK SURGERY??!!
My right foot and calf are numb. Its not from breathing too fast as suggested by the ER doctor. Its because my nerve has been pushed away from where it needs to be and there's a sticky mess all over the place. There's a very real reason for my excruciating pain and I'm terrified.
It takes a night for my shock to wear off and I come to the conclusion, I'm more afraid of this pain than I am of having my back cut into and my spine touched. I want this to be done. I want to be on the road to recovery. I don't want to fear this pain and feel like I'm made of glass.
I met Dr. Rust today and I want a microdisectomy. On Dec 21st he will make a small incision, drill a small hole and clean up my painful problem. If I don't choose surgery, I can try to live on pain medications for up to a year and see if my body removes the disc material. This long process means my nerve will be out of place and I will most likely never regain feeling in my foot. My body could also end up calcifying the disc material, leaving me with no choice but to have my spine fused together. I need to choose this surgery. There is no other option for me.
I hate having to wait a little over a week. I wanted Dr. Rust to operate on me today. I'm finding myself terrified of the pain. I don't know if I have the endurance to make it. Yes, I'm on real pain medication now, no more self medicating with Advil, but I still have a very vivid memory of the hell I've been through. The oxycodone takes the edge off, but my body is still letting me know, my nerve is seriously pissed off!
As much as I want this operation as soon as possible, I have anxiety about the recovery. Will it hurt worse? Will my nerve go back and my foot come alive once again?
I'm depressed about not being able to take care of my family and my work responsibilities. I haven't been able to do much to get ready for Christmas. Will I even be able to enjoy Christmas?
I know this surgery is the pathway towards recovery and I have to find patience. I'm still frightened of the unknown and the realization I'm not controlling this one.
I'm left alone in the room, staring at the computer screen, looking at that dark mess where it should be white. The pain I have been feeling is definitely there in black and white magnetic imagery.
Wait - did he say neurosurgeon as in surgery? BACK SURGERY??!!
My right foot and calf are numb. Its not from breathing too fast as suggested by the ER doctor. Its because my nerve has been pushed away from where it needs to be and there's a sticky mess all over the place. There's a very real reason for my excruciating pain and I'm terrified.
It takes a night for my shock to wear off and I come to the conclusion, I'm more afraid of this pain than I am of having my back cut into and my spine touched. I want this to be done. I want to be on the road to recovery. I don't want to fear this pain and feel like I'm made of glass.
I met Dr. Rust today and I want a microdisectomy. On Dec 21st he will make a small incision, drill a small hole and clean up my painful problem. If I don't choose surgery, I can try to live on pain medications for up to a year and see if my body removes the disc material. This long process means my nerve will be out of place and I will most likely never regain feeling in my foot. My body could also end up calcifying the disc material, leaving me with no choice but to have my spine fused together. I need to choose this surgery. There is no other option for me.
I hate having to wait a little over a week. I wanted Dr. Rust to operate on me today. I'm finding myself terrified of the pain. I don't know if I have the endurance to make it. Yes, I'm on real pain medication now, no more self medicating with Advil, but I still have a very vivid memory of the hell I've been through. The oxycodone takes the edge off, but my body is still letting me know, my nerve is seriously pissed off!
As much as I want this operation as soon as possible, I have anxiety about the recovery. Will it hurt worse? Will my nerve go back and my foot come alive once again?
I'm depressed about not being able to take care of my family and my work responsibilities. I haven't been able to do much to get ready for Christmas. Will I even be able to enjoy Christmas?
I know this surgery is the pathway towards recovery and I have to find patience. I'm still frightened of the unknown and the realization I'm not controlling this one.
No Mercy Health Support
After my latest fall, I found myself in my doctor's office. My right leg hamstrings were screaming angry. I knew I must have messed up something serious. My doctor prescribed a muscle relaxer and sent me home.
Tuesday morning I got up and fell again, this time in excruciating pain, unable to put any weight on my leg, unable to move at all. My screams scared the boys quickly out of bed. They brought me the phone and I called for my husband to come home from work.
My husband carried me to the chiropractor and I was grateful after that first adjustment, I could at least shuffle my feet. The pain never went away entirely however.
Thursday morning I had to call my husband home again. I have experienced 44 hours of labor and 20 minutes of pushing out an almost 10 pound baby. I have experienced passing kidney stones. The pain I experienced Thursday was like nothing I could have imagined. I screamed most of Thursday and when I could form words, I asked for God to take me. The pain was consuming me. I felt I was in hell. My husband and family were the only reasons I was choosing to fight on.
Calling my doctor, the nurse told me to call 911 and go to the Emergency room rather than an Urgent Care center. Her logic was they would call my neurologist down for a consult. I choose to skip the expensive ambulance and my husband drove me to the ER.
When we arrived at Mercy Hospital ER, no one was there. No receptionist, no one in the waiting room, no one around anywhere!! For a long 5-10 minutes, I cried and whaled, as we contemplated now calling 911. Where the hell was everyone? The receptionist finally showed up and checked us in. I was brought to an ER room where in tremendous pain, I could not sit or lay down. I could only stand up and bend over the sink.
After waiting forever, I was given a percocet and shot of anti-inflammatory and sent home. The pain was still present and I was in agony. I was only given a prescription for a day's worth of oxycodone. They told my husband my foot was numb because I was breathing too fast. They never called neurology for me.
Thursday night the pain became worse and I really wanted to die, thinking nothing could take me from this misery. We called the ER doctor back and all she said was, "It should be working. We've done all we could do for you."
Friday morning I called my regular doctor's office to follow up as instructed by the ER doctor. My regular doctor was closed. The answering service refused to put me through to the doctor on call. I called the ER at Mercy and told them I couldn't see my regular doctor to get a regular prescription for pain relief. The ER doctor refused to refill the order for the weekend to get me to Monday. Saturday, I ran out of prescription pain killers and resorted to taking Advil.
It was Tuesday before an MRI was done of my spine. Wednesday I learned I have a herniated disc at L5 S1. The sticky, jelly like material that is suppose to cushion my vertebrae had oozed out all over pushing my nerve out of place in the process. This is why I can't feel my foot and part of my calf and why I have excruciating pain in my upper leg and lower back.
I am very frustrated with how I was treated at the Mercy Emergency room. Why they didn't x-ray or scan me that day I don't understand. I feel like they viewed me as a drug abuser trying to score.
I am equally frustrated with my doctor's answering service for not putting me through even to a nurse when I asked.
I did call my doctor on Monday and complain. What good it did, I don't know.
I understand policies are in place to prevent medications from being abused, but I feel like I've been abused in the process. After experiencing such a depth of pain, I cannot understand why we don't do more to help people.
Tuesday morning I got up and fell again, this time in excruciating pain, unable to put any weight on my leg, unable to move at all. My screams scared the boys quickly out of bed. They brought me the phone and I called for my husband to come home from work.
My husband carried me to the chiropractor and I was grateful after that first adjustment, I could at least shuffle my feet. The pain never went away entirely however.
Thursday morning I had to call my husband home again. I have experienced 44 hours of labor and 20 minutes of pushing out an almost 10 pound baby. I have experienced passing kidney stones. The pain I experienced Thursday was like nothing I could have imagined. I screamed most of Thursday and when I could form words, I asked for God to take me. The pain was consuming me. I felt I was in hell. My husband and family were the only reasons I was choosing to fight on.
Calling my doctor, the nurse told me to call 911 and go to the Emergency room rather than an Urgent Care center. Her logic was they would call my neurologist down for a consult. I choose to skip the expensive ambulance and my husband drove me to the ER.
When we arrived at Mercy Hospital ER, no one was there. No receptionist, no one in the waiting room, no one around anywhere!! For a long 5-10 minutes, I cried and whaled, as we contemplated now calling 911. Where the hell was everyone? The receptionist finally showed up and checked us in. I was brought to an ER room where in tremendous pain, I could not sit or lay down. I could only stand up and bend over the sink.
After waiting forever, I was given a percocet and shot of anti-inflammatory and sent home. The pain was still present and I was in agony. I was only given a prescription for a day's worth of oxycodone. They told my husband my foot was numb because I was breathing too fast. They never called neurology for me.
Thursday night the pain became worse and I really wanted to die, thinking nothing could take me from this misery. We called the ER doctor back and all she said was, "It should be working. We've done all we could do for you."
Friday morning I called my regular doctor's office to follow up as instructed by the ER doctor. My regular doctor was closed. The answering service refused to put me through to the doctor on call. I called the ER at Mercy and told them I couldn't see my regular doctor to get a regular prescription for pain relief. The ER doctor refused to refill the order for the weekend to get me to Monday. Saturday, I ran out of prescription pain killers and resorted to taking Advil.
It was Tuesday before an MRI was done of my spine. Wednesday I learned I have a herniated disc at L5 S1. The sticky, jelly like material that is suppose to cushion my vertebrae had oozed out all over pushing my nerve out of place in the process. This is why I can't feel my foot and part of my calf and why I have excruciating pain in my upper leg and lower back.
I am very frustrated with how I was treated at the Mercy Emergency room. Why they didn't x-ray or scan me that day I don't understand. I feel like they viewed me as a drug abuser trying to score.
I am equally frustrated with my doctor's answering service for not putting me through even to a nurse when I asked.
I did call my doctor on Monday and complain. What good it did, I don't know.
I understand policies are in place to prevent medications from being abused, but I feel like I've been abused in the process. After experiencing such a depth of pain, I cannot understand why we don't do more to help people.
Friday, November 30, 2012
My Health Battle Continues
I've been struggling. I'm writing this for me. I understand how its not uplifting to be around a depressed person, so I don't expect this to be read. So why write it? Because somehow when I write it out, instead of all the negativity bouncing around inside my being, it is released through the words, and I feel I can move forward.
I don't know if I'm experiencing side effects of the medication, (Tegretol), or if I'm having more neurological symptoms. I'm having trouble swallowing. Anything small often gets stuck. I seem to be able to swallow but then I feel it get stuck on the way down.
For awhile now my left hand drops things unexpectedly. I wouldn't describe it as a weakness, but rather when I'm holding something without me being aware of it, my hand just gives out for a brief second, and I drop what I'm trying to hold onto. Sometimes it happens when I'm trying to grab something, and I can't seem to get my fingers to work correctly.
More troubling is the fact I'm falling. Without any warning, in full stride, my left leg disappears, and I'm a one legged woman going from vertical to horizontal, down hard. I'm not tripping on anything. Its as if my left foot and leg are not there. It happens for a split second but without the nerve messages firing to my brain, my left leg and foot do not work.
I'm grateful I haven't broken anything. For the most part, I've always landed correctly to avoid injury, however last night I fell walking Rigby in the dark. I couldn't get my knee down to do my usual brace my fall and then roll move. Incorrectly, my arms came down first, so today I'm very sore.
It makes me angry at first, but then I'm overwhelmed with fear. What if I break a bone next fall? What if I hit my head? What if this happens to me at work or when I'm around strangers. I'll die of embarrassment!
The medication I'm on for my trigeminal neuralgia is a nerve blocker. It has taken away the paralyzing, lightening strikes of pain on my face, but could this be causing me to be dropping things and falling?
I'm also concerned about my blood work. Although it seems my liver is holding up to the medication, my lymphocyte level is still low. A low lymphocyte count could be an indication of MS or Guillain-Barre syndrome. With these neurological disorders, the sodium channels are blocked so nerves don't fire properly. Ironically, the medication I'm on for Trigeminal Neuralgia is a sodium blocker. So is my medication causing my symptoms or could I possibly have MS or GBS? People with MS often develop TN so that has me wondering if I have MS.
It's a confusing puzzle for me. I'm waiting to hear back from my doctor as to whether I should make another appointment for testing.
I don't know if I'm experiencing side effects of the medication, (Tegretol), or if I'm having more neurological symptoms. I'm having trouble swallowing. Anything small often gets stuck. I seem to be able to swallow but then I feel it get stuck on the way down.
For awhile now my left hand drops things unexpectedly. I wouldn't describe it as a weakness, but rather when I'm holding something without me being aware of it, my hand just gives out for a brief second, and I drop what I'm trying to hold onto. Sometimes it happens when I'm trying to grab something, and I can't seem to get my fingers to work correctly.
More troubling is the fact I'm falling. Without any warning, in full stride, my left leg disappears, and I'm a one legged woman going from vertical to horizontal, down hard. I'm not tripping on anything. Its as if my left foot and leg are not there. It happens for a split second but without the nerve messages firing to my brain, my left leg and foot do not work.
I'm grateful I haven't broken anything. For the most part, I've always landed correctly to avoid injury, however last night I fell walking Rigby in the dark. I couldn't get my knee down to do my usual brace my fall and then roll move. Incorrectly, my arms came down first, so today I'm very sore.
It makes me angry at first, but then I'm overwhelmed with fear. What if I break a bone next fall? What if I hit my head? What if this happens to me at work or when I'm around strangers. I'll die of embarrassment!
The medication I'm on for my trigeminal neuralgia is a nerve blocker. It has taken away the paralyzing, lightening strikes of pain on my face, but could this be causing me to be dropping things and falling?
I'm also concerned about my blood work. Although it seems my liver is holding up to the medication, my lymphocyte level is still low. A low lymphocyte count could be an indication of MS or Guillain-Barre syndrome. With these neurological disorders, the sodium channels are blocked so nerves don't fire properly. Ironically, the medication I'm on for Trigeminal Neuralgia is a sodium blocker. So is my medication causing my symptoms or could I possibly have MS or GBS? People with MS often develop TN so that has me wondering if I have MS.
It's a confusing puzzle for me. I'm waiting to hear back from my doctor as to whether I should make another appointment for testing.
Sunday, November 04, 2012
What If I Had Been Unschooled
I know I was born an autodidact. Unfortunately, those responsible for loving and nurturing me as I grew didn't.
My mother brought me to preschool, and I made it through one day. Kindergarten she felt she had no choice. She had to make me go. I remember crying wanting to be home with her.
Kindergarten also meant no more freedom, no more safety. I didn't want to trace letters. Why can't I paint this "S" in red if I feel like it? That 5th grader stole my Indian headdress and you won't help me retrieve it?
I learned to survive, I needed to play the good student and give them the performance they expected, but when I was free, I was nose deep in the weeds imagining I was a higher life form, watching a tiny imaginary community. I had a rich fantasy life to balance out the conformity I was forced to spend most of my waking hours in.
Outdoors I lived in the giant lilac bushes in the backyard and climbed the crab apple trees. Indoors my mom would find me curled up in the hallway with encyclopedias. My favorite was the human body volume with the overlapping transparent pages showing the many organs, muscles and skeletal system that's inside each and every one of us. In my free time, I was exercising my autodidact, unschooling.
Unfortunately as I grew into adolescence and young adulthood, my free time became less and less. Rather than listen to my inner autodidact, I tried to figure out how to best fulfill the role everyone expected of me.
My inner autodidact went dormant. Not waking up until children of my own set off the alarm. I desired a better life for them. I wanted them to be free and in turn they freed me, waking up my natural, inner desire to learn as much as she could from the world around me. I had to model how to be an autodidact if I wanted them to embrace this freedom.
But what if I had been raised free, following my natural motivation? How would my life be different? I can't help but wonder.
Would I have been been a horticulturalist having chosen to spend so much time in the garden? Would my fascination with the human body have led me to the medical field? Would I have meshed the two interests together and become an herbalist?
I believe I wouldn't have been so concerned about living up to the expectations of others. I feel I would have had more confidence and been less afraid, if I was allowed to learn naturally. I would have been more focused on developing my strengths instead of always having my weaknesses continually pointed out to me.
I would have had less emotional wounds to heal from, which would have allowed for more opportunities for joy and stewardship. Its hard to heal a wound when someone keeps picking at the scab. I had wounds that didn't heal until I had a family of my own, to love me unconditionally.
I wish I could go back in time, staying home with my wonderful, artistic mother. Maybe then I would trust and not judge my ability to color and decorate the world around me. I wish I could have strengthened the relationships I shared with people around me instead of being pushed into competition and rank.
Living and learning in a environment where you are loved unconditionally truly brings out the greatest growth in a person. I'm just thankful I found this lifestyle and God brought me loving people to share it with. I'm grateful I found this better path before it was too late. I'm grateful over time, I deschooled and began to trust myself, and trust my children.
My mother brought me to preschool, and I made it through one day. Kindergarten she felt she had no choice. She had to make me go. I remember crying wanting to be home with her.
Kindergarten also meant no more freedom, no more safety. I didn't want to trace letters. Why can't I paint this "S" in red if I feel like it? That 5th grader stole my Indian headdress and you won't help me retrieve it?
I learned to survive, I needed to play the good student and give them the performance they expected, but when I was free, I was nose deep in the weeds imagining I was a higher life form, watching a tiny imaginary community. I had a rich fantasy life to balance out the conformity I was forced to spend most of my waking hours in.
Outdoors I lived in the giant lilac bushes in the backyard and climbed the crab apple trees. Indoors my mom would find me curled up in the hallway with encyclopedias. My favorite was the human body volume with the overlapping transparent pages showing the many organs, muscles and skeletal system that's inside each and every one of us. In my free time, I was exercising my autodidact, unschooling.
Unfortunately as I grew into adolescence and young adulthood, my free time became less and less. Rather than listen to my inner autodidact, I tried to figure out how to best fulfill the role everyone expected of me.
My inner autodidact went dormant. Not waking up until children of my own set off the alarm. I desired a better life for them. I wanted them to be free and in turn they freed me, waking up my natural, inner desire to learn as much as she could from the world around me. I had to model how to be an autodidact if I wanted them to embrace this freedom.
But what if I had been raised free, following my natural motivation? How would my life be different? I can't help but wonder.
Would I have been been a horticulturalist having chosen to spend so much time in the garden? Would my fascination with the human body have led me to the medical field? Would I have meshed the two interests together and become an herbalist?
I believe I wouldn't have been so concerned about living up to the expectations of others. I feel I would have had more confidence and been less afraid, if I was allowed to learn naturally. I would have been more focused on developing my strengths instead of always having my weaknesses continually pointed out to me.
I would have had less emotional wounds to heal from, which would have allowed for more opportunities for joy and stewardship. Its hard to heal a wound when someone keeps picking at the scab. I had wounds that didn't heal until I had a family of my own, to love me unconditionally.
I wish I could go back in time, staying home with my wonderful, artistic mother. Maybe then I would trust and not judge my ability to color and decorate the world around me. I wish I could have strengthened the relationships I shared with people around me instead of being pushed into competition and rank.
Living and learning in a environment where you are loved unconditionally truly brings out the greatest growth in a person. I'm just thankful I found this lifestyle and God brought me loving people to share it with. I'm grateful I found this better path before it was too late. I'm grateful over time, I deschooled and began to trust myself, and trust my children.
Wednesday, October 31, 2012
Happy Halloween!
Here is the yearly pumpkin carving project. DS13 wanted to make a pumpkin eating a pumpkin, eating a pumpkin. I thought DS17's pumpkin looked like the annoying orange, but that wasn't who he was going for. We were surprised at how thick the pumpkin rind was. The farm we get our pumpkins from always has great pumpkins and gourds. Given our drought this summer, I'm amazed at how thick these pumpkins are.
We cleaned out the seeds and soaked them over night in sea salt. They are roasting in the oven now and smell so good. I almost didn't save them for roasting, but the boys talked me into it.
We have a bucket of 1000 Dum Dum suckers plus a bag of tootsie rolls ready to go. We usually get around 200 trick or treaters because our home lies in the path linking two neighborhoods together. The boys feel too old to go trick or treating so they are in charge of handing out candy and making sure Rigby doesn't get out the door!
I have to work tonight, but I'm thinking it is going to be really slow. Many parents won't bring their kids to swim lessons because they'll be trick or treating. Some were surprised we weren't closing, but not all families trick or treat. Since my boys won't be going out tonight, I don't mind working. We'll probably end up watching scary movies after I get home. Hope your Halloween is happy and safe!
Sunday, September 23, 2012
Unschooling Ribgy - Puppy Update 9/21/12
- Unschooling Rigby - Puppy update for 9/21/12
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- September 21st, 10:04
- Current Mood:
calm
Step by step, things are falling into place and our anxiety levels are lowering.
Since bringing Rigby home last Saturday, he's had soft, bloody stool. I called the vet on Monday, and they wanted to see him Thursday. I was told they preferred to wait 7 days from when you picked him up, thinking he needed time to adjust to his new home.
Tuesday night he gave us a scare. He was lethargic and his breathing seemed labored. I freaked out. I was completely attached heart and soul to this pup, and the thought of him not making it was too much for me to bare. I called the vet and said we had to come in sooner than Thursday.
Wednesday morning they got us in first thing. His stool tested positive for Giardia. In hindsight, I should have demanded the vet see us Monday. They gave us medicine and Ribgy very quickly has responded. His stool is firming up and the blood is gone. He isn't going as often either.
Crate training- Many have suggested we crate train. The first night, we kept his crate by our bed. He whined until we figured out we had to make the room completely dark. We expected him to whine when he had to go to the bathroom. He didn't. DH woke up around 4:00am to the aroma. The poop was all over Rigby, the crate and our floor.
The second night we moved the crate to the kitchen/dining area. Whining amped up to howling. He was not whining because he had to go potty. He just did not want to be in the crate.
On the third night, I decided to sleep on the couch and not crate him. I hoped the rest of the family could sleep. Rigby did awesome. He laid down between the couch and the ottoman and fell asleep. I was able to get up around midnight and move to my bed. So now we are not crating him. He has free reign of the kitchen/dining/living room area, and he seems happy. He will curl up on his make shift dog bed, (its a chair pad) and sleep hard. We say goodnight, leave him, and he is fine.
We take him out very often. He's getting a lot of exercise. I think this is why he sleeps so deeply. Potty training is coming along too. When we see him potty outside, we praise him and give him a treat. Yesterday he peed and then turned and looked directly at me with this look on his face. It read - Did you see me? I peed! I gave him praise and he ran up to me so happy. I know he is starting to understand. He's now taking care of his potty needs outside more often than inside.
As a condition of buying him, we had to take him to a certain vet. Now that we have met that obligation, I will be looking for a new vet. I didn't like waiting for Ribgy's first appointment, especially when we saw bloody stool. When I mentioned I had concerns about the amount of scratching he was doing, the vet asked, "Have you bathed him?" Well, yeah. He had poop all over himself that first night home. He said Rigby's dry skin was because we had given him a bath. It was basically a warm water bath, no soap.
I was hoping for advice on how to relieve puppy dry skin. Give him oils? No baths? Really? The shampoo I made him has apple cider vinegar which should be good to restore his PH. I remember when my son had severe dry skin our doctor said frequent baths actually helped if you followed up with skin lotion. For now, we're skipping the urge to bathe him. We wipe him down with towels if he gets into something he shouldn't. I'm hoping our new vet will have better advice.
Shortly after bringing him home, it began to overwhelm us. We all had that feeling in the pit of our stomachs. What have we gotten ourselves into? Will our life feel relaxed again? The lack of sleep did not help. There was so much to teach him!
I decided to take an unschooling, relaxed approach, which has always been our family's learning style. Once I focused on one thing at a time, and on the moment at hand, I began to relax and feel this was going to work out. We had lots of advice from our friends and family, but I tuned into Rigby's needs and how we could best meet them. Taking it one concern at a time, and not thinking about how much we had to accomplish helped.
Tomorrow it will be one week since he's been a part of our family. Today he is 12 weeks old. We may have many expectations for our Rigby, but we have time to take it slow and enjoy his puppyhood.
Meet My Therapy Dog, Rigby
- Meet My Therapy Dog, Rigby!
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- September 17th, 11:33
- Current Mood:
anxious
He's not technically a therapy dog, but I will tell you, since bringing him home, I haven't noticed my TN very much. I've been too busy!! I'm actually very surprised bringing home Rigby hasn't triggered my attacks due to the stress and severe lack of sleep.
DO NOT LET THIS PHOTO FOOL YOU! He's not sleeping through the night. Just like a new baby, he's up all night, needing our attention. He is not yet 3 months old. I'm hoping he really will grow out of this phase. I'm sure once he does, I will miss his cute teeny tiny-ness.
Our family has been thinking about getting a Pembroke Corgi for quite awhile now. This wasn't an impulse buy, although finding him feels impulsive. I had just about given up being able to find an available Corgi, when he became available. We had started looking at shelter dogs, but quickly realized we needed our dog to have a good temperament to begin with to make the transition easier for our kitty.
I'm pleased with how well it is going with Yumi. She seems to tolerate him but she does have the high ground. Rigby is low and can't jump or climb stairs yet. When Yumi needs to, she can get away into the Game Cave, or she watches him from on top of her chair. Last evening they were even sleeping within 3 feet of one another.
Wait, did I say Rigby was sleeping?
Over nights have been the greatest challenge. We've tried the crate in our room, the crate out of our room. Tonight I'll give the family ear plugs and we'll try no crate, or maybe go back to crate in our room. Its hard to figure out. He doesn't seem to be whining to tell us he needs to go potty. He's had plenty of puppy accidents. Our noses tell us its time to clean his crate. It doesn't seem to bother him and he'll just go.
We will have to take baby steps with our new baby. I think trying to potty train, crate train, collar train all at once is expecting too much. I'm sure we'll get there, and one day he'll be our walking companion as I dream he'll be.
After this stressful weekend, I've decided this week we're just going to relax and settle in. Its a big change for our family. He is a dog, not a baby, but its a big change. We're all feeling a little anxious, and I know that doesn't help Rigby feel at home.
Not My Mother's Potato Soup
- Not My Mother's Potato Soup
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- September 14th, 12:06
- Current Mood:
- creative
I have a special relationship with potato soup. It was homemade potato soup that gave me the stamina to survive 44 hours of childbirth labor. My mother had made a wonderful batch of potato soup the day we awaited my son's arrival. Potato soup was all I could stomach and keep down. Potato soup is comfort to me. I enjoy my mother's potato soup immensely, however I decided to make a version that would speak to who I was.
I found a recipe through Pinterest for Garlic Potato soup that inspired me. It gave me the opportunity to use fresh potatoes harvested from my garden and garlic we had grown ourselves.
I did not discover the taste of garlic until I left my mother's nest. My mom doesn't like it so she never used it preparing our meals. As a bird out on my own, my first slice of garlic toast I was smitten with it. I've cooked with garlic and eventually found myself eating it raw for the health benefits. I can't imagine my life without garlic.
I was excited to grow it in my garden. I grew several varieties including elephant garlic which I decided to try in this recipe. Elephant garlic is not quite as strong and sharp, it's more sweet. It ended up working in this soup nicely. Elephant garlic is huge. One clove is the size of a small bulb of regular garlic.
The potatoes I grew were white, with thin tender skins. I decided to leave the skins on for added nutrition and they cooked up very well. The soup's texture is creamy without having to add cream.
I started with homemade turkey stock. I finely diced the veggies and threw them in. I brought the soup to a boil and cooked with the lid on for 15 minutes. Once the veggies were tender, I removed the bouquet garni and reduced the heat. Using an immersion blender, I blended just a bit, still leaving a few good chunky bits because that's how I like it. I seasoned with a bit of pepper, another ingredient my mother has an aversion to. I felt the soup didn't need salt, but that's my taste buds. After giving up salt for health reasons, I can taste more flavors from the veggies.
- 1 quart of turkey stock, (add additional water if needed to cover veggie and potatoes)
-4 carrots, diced
-2 celery ribs, diced
-1 large onion, diced
-2 gloves of elephant garlic, diced (If using regular garlic, use more than 2. Elephant garlic is much larger.)
-about 8 potatoes, chopped
1 bouquet garni - these are little bundles of spices you bundle together in cheesecloth to flavor soups. My mom makes and gives these as gifts.
- Pepper to taste
I'm planning on putting away more homemade soups so I have something to reach for on those busy nights when I get home from work.
5 Positive Thoughts
- 5 Positive Thoughts
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- September 11th, 9:54
- Current Mood:
optimistic
My friend has encouraged me to share 5 positive things in my life today. This is a challenge for me, because it feels like I don't have much choice today, and that lack of choice always limits my positivity. Most of my day today will be spent not as I would like it to be, but I can still look for the positive.
1. I woke up early, but I woke up without face pain. To have my face smooshed into my pillows and not feel discomfort was wonderful. I will remember that I had that pain free moment, on a morning I'm not so fortunate. I will use that memory to fuel my hope for more pain free mornings.
2. The windows are open. Cool breezes are blowing through my Sleepyhouse and it feels wonderful after such a hot summer. I'll gladly put on a pair of slippers to keep those windows open and the fresh air flowing.
3. I have access to health care. I found myself worrying about what would happen if my husband was laid off and we lost our health insurance coverage once again. I shouldn't do that, worry about what could happen. At this moment, we have it, and my health issues are being supported. I'm grateful for that, and I will not worry about losing coverage. I will use this opportunity to take care of my medical needs now and not put anything off for later. I will take care of myself so I can take care of my family.
4. My fall lettuce is sprouting! After a disappointing summer harvest due to our drought, I didn't give up. After harvesting potatoes, I looked down at the newly cleaned up garden bed and I couldn't resist. Hope returned, and I sprinkled lettuce and spinach seeds. My new garden babies are poking through the dirt! I'm beginning to fantasize about future green salads with dried cherry tomatoes.
5. If my schedule permits, I will be pushing outside my comfort zone this weekend. My sister is challenging me to take part in a fashion show. Since I've decided this is my year to be fearless, I think I'll do it. The fashion show is hosted by a women's clothing store and will feature all real women customers as the models. We'll get 40% off if we want to buy our outfit. I think a runway walk would be a fun addition to my bucket list.
Discussing Politics With Our Unschooled Future Voters
- Discussing Politics With Our Unschooled Future Voters
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- September 10th, 10:53
- Current Mood:
contemplative
Whether I like it or not, my children are exposed to politics and questions are popping up. My husband has watched both conventions, and I watched as much as I could. (I have to keep my stress level down these days.) I've noticed the boys have been watching too.
I was a bit concerned when our boys thought our country only has two political parties. I guess I shouldn't be surprised. The media has branded that very well. I ran the list off of other known parties, and they were shocked to discover there were so many more. They wanted to know why we only see and hear about the two.
Questions popped up as to which party do you belong to and who are you voting for. DH & I both explained how we are not registered with any party, so we're what the media calls Independent. We don't vote for any candidate because he or she belongs to a particular party. We don't vote for who has payed for the most commercials or who employees the best speech writers. We don't vote for who has more money. Our vote is never swayed based on signs appearing in my neighbor's yard or on bumper stickers. Our vote is not based on the candidate who robot calls our home the most, although its very tempting to NOT vote for anyone who robot calls our phone!! We recycle every political postcard we get in the mail WITHOUT caring what it says. We never allow marketing to influence us.
We told our children, we vote based on our own research, after we find a candidate who shares the same ideals as we do. You have to look for the facts as well as review a person's history. You have to keep in mind every politician is going to say what you want to hear to get your vote, so you have to be able to use your mind and think through that motivation.
You should never vote for someone, just because someone you know endorses that candidate. You always need to think for yourself and make your own decision based on your research, not someone else's. You also need to respect the choices of others, even when they are not your own. If you respect someone, you honor their ability to make up their own mind and you don't feel you have to sway them to your way of thinking. A true friend doesn't try to change who you are, but rather accepts you just as you are.
We have witnessed some hateful behavior during this political season. I know it reflects back to those who are spreading it, and I wish I could help my children understand why people make disrespectful choices, but I can't. I'm grateful my children understand that lying, name calling, bigotry and other disrespectful behaviors are not what our family values.
Thursday, September 06, 2012
I Don't Want To Play On The Teeter Totter
- I Don't Want To Play On The Teeter Totter
-
dawninger
- September 6th, 20:08
I'm having to push myself up, and I so easily seem to be falling down, just when I arrive at my high. I need to put on my glasses and see who exactly is sitting on the other end of this?
I met and felt very comfortable with my new dermatologist. I looked forward to scheduling a follow up appointment to remove a few barnacles of my life. She caught me completely off guard when she announced she had the time to do the procedures NOW!!!
WHAT??? NOW???? EEKK!!! I'm not ready.
Wait, I'm suppose to be fearless and 44. Lead me to the procedure room. Let's do this!
The numbing needles felt, well, like nothing. On my back I literally felt absolutely nothing. No pin prick, no burning. On my scalp, barely a pin prick and then nothing. Then I remembered. I have a new pain threshold tolerance thanks to trigeminal neuralgia. I should have told the doctor to skip the numbing and just go at it with her scalpel.
Feeling pretty good now that its over and it was pain free, I headed home and picked up the mail. I truly expected to open the envelope from the mammogram center and read everything was fine with the girls. Note to self - ONLY OPEN LETTERS FROM MEDICAL CENTERS WHEN THE OFFICE IS STILL OPEN.
Ahhh... maybe I can see now. That's anxiety girl sitting on the other end of my teeter totter. Anxiety girl is freaking out she's being asked to schedule a more detail imaging scan.
Remember Dawn - Fearless and 44. Plenty of women get called back and it turns out to be nothing to worry about.
I'm hopping off the teeter totter and slamming Anxiety girl on her ass.
Saturday, September 01, 2012
Ran Away To Enjoy The Day
- Ran Away To Enjoy The Day
-
dawninger
- September 1st, 19:20
- Current Mood:
cheerful
I ran away today. I have lots to do, and I should have stayed put, but I needed to run away.
My family joined me. We found a flea market where we bought a game of Trivial Pursuit for a $1 and a collectable bottle of Coke for DS16's collection. DH saw a cute rooster napkin holder and just as he pointed it out to me and said, "Look at that rooster," a woman snatched it up before we could reach it. We had a little laugh about it.
Next to the flea market was a huge antique store. DS13 found two military patches he liked. The patches were labeled, describing what they were for, but the clerk removed the labels when we paid for them and now we can't remember what they were issued for. We'll have to do some internet research. He wants me to stitch the patches onto his hoodie, but I better find out what these patches mean first and if it would be okay to do so.
There was another huge anitque mall across the street, but we were overwhelmed and spent. We'll plan for another weekend outing to that store.
We hit up several used movie, CD, game stores and then enjoyed a "Lupper", (lunch-supper).
There was a brief, but beautiful rain shower. It smelled so good and the rain was cool and refreshing. The puddles dried up too quickly.
We're going to put our feet up tonight and tomorrow we'll get back on task.
Friday, August 31, 2012
MRI Report
- MRI Report
-
dawninger
- August 31st, 14:55
- Current Mood:
- determined
The aliens have completed their testing on me. They called today to let me know, http://youtu.be/OaTO8_KNcuo
I knew the MRI was going to be loud and claustrophobic, but I asked for ear plugs, and I shut my eyes before being pushed in. You wouldn't think you had to go in so far when its just your brain they are looking at, but they push you in up to your waist. The tube isn't wide enough for your arms, so they have to sit up on your chest a bit. I crossed mine and did my best vampire pose, eyes shut. The technician attached a mirror to my head cradle if I wanted to look out, but that is disorienting as well, so I did best just keeping my eyes shut and focusing on breathing.
The machine is loud. You first hear the magnet zooming around and it almost sounds like a heartbeat. It was easy for me to imagine I was safe, in the womb, but then the machine proceeds to make much louder, strange noises. For awhile I thought I was at a horrible rock concert with the guitarist strumming the same note over and over, again and again.
They pulled me out and injected me with aquatic creature residue, aka, contrast. I did have a slight metallic taste in my mouth, but it wasn't too bad. I knew there was going to be chocolate in my future, so I could put up with it.
Back in I went for another round, although it didn't last as long as the first series. I was just happy the loud noise didn't trigger my TN.
The nurse from my nuerologist called and said I do have several blood vessels that are sitting up against my trigeminal nerve. I'm choosing to be positive. Its not a tumor. Its not MS. Its several blood vessels bullying my nerves. I will have a follow up appointment in October and for now, they are keeping me on Tegretol, which I'm thankful, has taken the edge off for me.
I am continuing to use healing meditations and relaxation to encourage my body to HEAL ITSELF!! The way I see it, I've had these blood vessels all of my life. My nerves needs to restore their myelin protective coating and be happy once again. I'm not giving them any other choice. GET TO HEALING NERVE CELLS!!
Tuesday, August 28, 2012
Not Feeling Very Positive At The Moment
- Not Feeling Very Positive At The Moment
-
dawninger
- August 28th, 20:49
- Current Mood:
exhausted
I keep re-reading the last paragraph of my last post, trying to get that vibe back into my soul. I'm not feeling upbeat and positive today. I'm starting to wonder if feeling a little down, for a short while, is actually okay. Maybe I'm like a spring that needs to be pushed down before jumping up higher?
Maybe I'm sleep deprived? Too nervous to sleep before the doctor appointments last night, and then I was robbed of a few more precious hours this morning. DH locked himself out and when I didn't hear the doorbell, he pounded on our bedroom window at 5:30am. I was having a stressful dream, (evil parents trying to control their children), and the pounding only made my heart race faster. There was no going back to sleep after that.
Being able to work from home this week, I decided to start today at 5:30am since I was already up. The house was really quiet and my work did not distract me from noticing every little nerve attack in my face. I worked over 8 hours, noticing just how often I was getting attacks. I'm grateful they were low level attacks, and I could work right through them, but their frequency depressed me. I tried putting on music, but I still found myself making a mental connection to every attack.
It has to be because I'm sleep deprived and this has me feeling low. If I were more rested, I bet I could distract my attention from these mini TN attacks.
I keep seeing the neurologist's face when I told him I didn't want to only treat my TN symtoms, I intend to heal my nerves and be cured. He looked at me like I was a fool. At the time, I felt deviant. This guy's a moron, I told myself. I will heal my nerves and be cured!
I do think I need to find a new neurologist who I click better with and who is willing to be on my team positive!
I need to sleep tonight too.
And not dream about parents in an evil cult. I'm currently too busy trying to be my own superhero.
Monday, August 27, 2012
Awkward,Annoying, At Least They're Over With For Today! (Doctor visits)
- Awkward, Annoying, At Least They're Over With For Today! (Doctors Visits)
-
dawninger
- August 27th, 15:22
- Current Mood:
hopeful
I made it. Its now the afternoon, and I can relax and look forward to spending the rest of the day with my nest mates. For the record I slept very little last night, so I will most likely crash out early.
I saw my general practioner for my annual physical. We have new insurance and our clinic has switched out doctors. I did meet our new GP when he diagnosed my trigeminal neuralgia last month, which I'm grateful he was able to do, being a small town doctor. Today was my first annual physical with him though. I got the impression he doesn't do many pap smears each day. He seemed really nervous, more than me!! Up until this point he's always been cool, calm and friendly. Why was my vagina so scary? LOL!
He called a nurse into the room, which I didn't feel was necessary, but whatever. I'm 44. I've had plenty of poking and proding over the years. I don't take it personal. I see it as an uncomfortable necessity of life to stay healthy. I lost a dear cousin to ovarian cancer because she avoided these types of doctor visits. After that loss, I promised myself I would take care of myself for the sake of my family.
After my physical, it was time to head to the neurologist to discuss my TN. This is where my day gets annoying insead of awkward if you're keeping track. The nurse was pleasant, but when the neurologist entered, it went down hill. His bedside manner meter = zip, nada, zero. He typed into the computer his notes the entire time rather than actively listening to me. I felt like I was dictating to him, always unsure if he was hearing me and keeping up with what I was reporting.
He ordered an MRI, with and without contrast, and then I'll meet with him again. When I tried to ask about alternative therapies, he said, "There's nothing you can do. You will have this the rest of your life. We don't know why it happens, and there is no cure. We can treat you with medications and nerve blocks."
I challenged that and asked about B vitamins, chiropractor adjustments, accupunture, myofacial release, etc and his response, "If you want to try it. Go ahead. If it won't harm you, try it."
I was disappointed he did not offer any of these suggestions and it was me who had to bring them up. I've been researching this condition since being diagnosed by my GP last July, and I have learned more on my own than I've learned from this neurologist. I'm so glad I'm an autodidact!!
I will have the MRI, meet with him one more time, and then decide if I'm staying with this dude. I will be looking into alternative therapies because I'm not interested in only treating the symptoms, but my goal is healing.
I left this negative experience with the thought, I can still choose to be positive. I will not allow anyone to bring me down. I can be friendly, caring and loving despite being judged. I am blessed with wonderfully supportive, loving people in my life from which I can model this lifestyle. I'm going for it!
Night Before Doctor Visit Jitters - 8/26/12
I should be trying to sleep, but I have too much anxiety about seeing doctors tomorrow, first my GP then the neurologist.
I hate physicals. I understand they are important, but I just feel so uncomfortable. My doctor's office is always really hot, which doesn't help. Laying on the paper which sticks to me every time I attempt to move, I can't help but feel like a piece of meat.
I'm sure I'm going to be too self conscious, to remember to ask about all the things I want to bring up. Hopefully I don't forget my notebook, where I've jotted some things down I want to cover.
The nurse will give me a hard time about how I'm overdue for my boob smoosh and vaccinations, but frankly, I've been too concerned about my recent trigeminal neuralgia diagnosis. I wish I could skip the physical and just pow wow with the neurologist.
I've been keeping a notebook recording my symptoms. I thought that would help, but sometimes it freaks me a little. The level 8-9 attacks are practically gone, and I can count on my hands how many times I reach 5-7 levels each week, but I'm still having episodes that feel like 3's or other types of symptoms.
Sometimes it feels like I've been poked with a needle repeatably in my mouth and it feels stiff, like when your novacaine shot wears off and the gum tissue feels achy. That lasts sometimes all day long. Sometimes I feel pain in my left nostril in addition to my cheek and jaw. I've had moments of tinglying from the back of my head wrapping around to my left face, or sometimes its just the left half of my lips experiencing a pins and needles sensation. I've also noticed the hearing in my left ear seems to be affected.
I've also developed triggers. When this first started for me, it would happen with no rhyme or reason. Sometimes that is still the case, but now I notice eating and laughing can cause attacks for me. I'm sensitive to hot or cold food and drink. Loud noises trigger my TN too.
If I get tired, it gets worse.
If I am stressed, it gets worse.
So I really shouldn't be up now, worrying about my doctor visits right!!
It is helping to get the worries out of my head, and type them into the glowing, rectangle facing me right now.
My goal tomorrow is not to worry about being judged. My goal is information. I have to focus on that.
If you're read this far, thank you. I'm going to try and do some relaxing meditations and hopefully I will fall asleep. I'll let you know how tomorrow goes.
Peace and love to you!
I hate physicals. I understand they are important, but I just feel so uncomfortable. My doctor's office is always really hot, which doesn't help. Laying on the paper which sticks to me every time I attempt to move, I can't help but feel like a piece of meat.
I'm sure I'm going to be too self conscious, to remember to ask about all the things I want to bring up. Hopefully I don't forget my notebook, where I've jotted some things down I want to cover.
The nurse will give me a hard time about how I'm overdue for my boob smoosh and vaccinations, but frankly, I've been too concerned about my recent trigeminal neuralgia diagnosis. I wish I could skip the physical and just pow wow with the neurologist.
I've been keeping a notebook recording my symptoms. I thought that would help, but sometimes it freaks me a little. The level 8-9 attacks are practically gone, and I can count on my hands how many times I reach 5-7 levels each week, but I'm still having episodes that feel like 3's or other types of symptoms.
Sometimes it feels like I've been poked with a needle repeatably in my mouth and it feels stiff, like when your novacaine shot wears off and the gum tissue feels achy. That lasts sometimes all day long. Sometimes I feel pain in my left nostril in addition to my cheek and jaw. I've had moments of tinglying from the back of my head wrapping around to my left face, or sometimes its just the left half of my lips experiencing a pins and needles sensation. I've also noticed the hearing in my left ear seems to be affected.
I've also developed triggers. When this first started for me, it would happen with no rhyme or reason. Sometimes that is still the case, but now I notice eating and laughing can cause attacks for me. I'm sensitive to hot or cold food and drink. Loud noises trigger my TN too.
If I get tired, it gets worse.
If I am stressed, it gets worse.
So I really shouldn't be up now, worrying about my doctor visits right!!
It is helping to get the worries out of my head, and type them into the glowing, rectangle facing me right now.
My goal tomorrow is not to worry about being judged. My goal is information. I have to focus on that.
If you're read this far, thank you. I'm going to try and do some relaxing meditations and hopefully I will fall asleep. I'll let you know how tomorrow goes.
Peace and love to you!
Wednesday, August 22, 2012
Lasagna Roll Ups
The rest of my family does not eat lasagna, but I love it. I needed something I could freeze and heat up for nights I work. It came together pretty easy, but the next time I make this, I'll use more veggies in addition to the spinach. I'm thinking chopped, roasted tomatoes, garlic, summer squash, would be nice additions. I sprinkled pepper into the spinach cheese mixture and then sprinkled garlic powder on top. Next time I'll boost up the seasonings, using Italian herbs and more garlic.
Recipe:
9 cooked lasagna noodles, drain and lay to dry on a clean kitchen towel
10 oz package of frozen spinach, thawed and drained
15 oz package non-fat ricotta cheese
1/2 C parmesan cheese
1 egg
32 oz tomato sauce
9 T mozzarella cheese- I'll admit, I probably used more.
-Preheat oven to 350
-Ladle 9 x 11 pan with about 1 cup of tomato sauce, reserving the rest to pour over the roll ups
-Mix together the spinach, ricotta, parmesan and egg
-Lay out each lasagna noodle on a piece of wax paper and spread 1/3 cup of spinach mixture onto noodle
-Roll up the lasagna noodle and place in the baking dish
-Pour remaining tomato sauce over the rolls ups
-Sprinkle 1 T of mozzarella cheese on top of each roll up
-Cover with foil and bake for 40 minutes or until cheese is melted
Monday, August 20, 2012
- Weekend Fun 8/19/12
-
dawninger
- August 19th, 19:13
- Current Mood:
hopeful
Despite it being a short weekend for me, (I had to work for part of it), I'm having a great time with my family.
G-Ma came for a visit, showing us photos from her recent trip to Ireland. It looks like such a beautiful country, I wish I could visit it one day. She said everyone was so friendly, something we don't often get to experience here.
We attended our cousin's bowling party and had a great time. We'll have to go bowling more often. It had been so long since we last bowled, and I forgotten how fun it is.
We've been watching the Dew Tour, enoying the BMX riding. Of course its motivating DS13 to practice more tricks. I keep hoping and mentioning to him, "Don't break anything!" So far, thankfully he's only broken pedals, tires and his shoes. All of that I can handle. The day he comes in with a limb bent the wrong way, I'm going to pass out.
I had a surprise visit from my sister and niece. My niece has invited us to a Halloween party this October, and we discussed trying to get together at least monthly to go hiking and explore. I love having something to look forward to, and I'm not going to worry about if I will feel up to it. I'm just going to plan like I will be well enough to enjoy it.
In the spirit of not worrying about how I'm going to feel down the road, I booked a family trip to the next Unschoolers Waterpark Gathering in February. We've attended the last few years, and have really enjoyed it. I know its given all of us something to look forward to.
I have a feeling this upcoming week is going to go by quickly, which is something else I'm looking forward to.
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