I've been given the opportunity to learn how to function while in extreme pain. The clinical diagnosis is trigeminal neuralia. I know soon, my general practitioner will be referring me to a neurologist because the prescription medicine doesn't appear to be working for me.
At any given moment, without a warning, without a trigger, the left side of my face screams out in electrical, sharp, paralyzing pain. It also attacks the left side of my tongue. On a scale of 1 to 10, with 10 being the worst imaginable, my pain level often reaches 9, and I find myself in the fetal position consumed in misery. Its a pain I wouldn't wish on my enemy.
When I'm not being attacked, I walk around in fear, wondering when the next assault will happen. Will I be home and able to lay down? Will I be at work and have to fight through it to keep a smile on my face for customers? To look at me, you cannot see anything wrong with me.
There is a high rate of suicide among people afflicted with trigeminal neuralgia. Doctors say this is one of the most painful conditions known to man.
I'm praying I will be cured. I'm praying I will be delivered from this pain. I'm praying I will not fall further into the depression I am now slipping into.
I'm posting two videos below, mostly for my future reference as I navigate this new challenge in my life.
http://www.youtube.com/watch?v=wYpWgeC3K-s&feature=related
http://www.youtube.com/watch?v=ypckUpTtXPs&feature=related
8 comments:
My thoughts and prayers are with you. I hope that you do find a doctor that can help ease your pain and your worry. Gentle Hugs Across the Miles
Oh Dawn. Count on my prayers, for sure. When did this start? Was it sudden, or gradual? I'm so sorry! I will look at the videos so my thoughts and prayers can target specifics! I hope you get an appointment with the neurologist soon.
Praying for you. This sounds awful!!
I'm so sorry you are having to go through all this & for all the bad pain-sounds extremely painful :( . My thoughts are with you~ ((HUGS))
Oh Dawn I have never heard of this and it sounds so bad!!! I am so sorry you are having to deal with this!! I will be praying for you and thinking of you!! Please keep us updated on how your doing!! Hugs to you
I'm so sorry to hear that you are going through this. I get horrible migraines occasionally that come out of nowhere and I know that fetal position. I hope you get in to see specialist sooin and he can help you. *hug*
It started a few weeks ago. At first, I thought I might have TMJ, or that I needed a root canal after having crown work done about 2 months ago. The pain would come and go though, so I knew it wasn't an abscess. After about a week, the pain intensified to the scary point.
If you have ever had the unfortunate experience of being hit with the Novocaine needle directly on your nerve, that's what it feels like. I knew it was nerve related because of how half my tongue was effected, and when the pain subsides, it reminds me of when Novocaine wears off. The pain is sharp, electrical, at its worst. Some times it doesn't hit as hard now that I'm on meds, but its still happening to me randomly.
Its made me depressed and anxious. I don't like not being able to take care of my responsibilities, and not knowing when the next attack will strike leaves me unable to relax, which doesn't help things.
Knowing this is the "suicide disorder" at first scared me, but being aware of that only makes me more determined to stay in control of my health. When I start feeling down, I get close to a family member for support. Prayer is also helping me through this. I will do whatever it takes to reclaim my life.
I am so happy to read your last couple of sentences! I know you are a fighter! I did go out on the internet to read about this crazy thing. It does seems like you have a good chance that it can be controlled, and that it will even go away (into remission). That's where I will focus my prayers for you!!! Keep that determined attitude, and keep us posted, please, about your appointment with the neurologist.
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